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The newsletter for a UK charity driving Digital Health Initiatives for kids and families impacted by Sickle Cell and Thalasseamia.
August Edition: Back to School Read Time: 5-10 minutes Who should read this?Parents, carers, teachers and anyone supporting a child living with sickle cell. The Invisible Backpack Item Hello Reader, As August rolls in, families all over the world are preping for school. But for a parent of a child with sickle cell, packing a school bag feels a bit different. You are also packing emergency numbers, extra water bottles, and perhaps a quiet worry. We know that sickle cell looks completely...
🚨 HEATWAVE ALERT Read Time: 5-10 minutes Who should read this?Parents, carers, teachers and anyone supporting a child living with sickle cell. Heatwave: Tips to Keep Your Child with Sickle Cell Safe Hello Reader, The UK is experiencing another heatwave, with temperatures climbing into the 30s°C and an amber heat-health alert in place across England. While many people see sunshine as a chance to enjoy the outdoors, families living with sickle cell know that extreme heat can bring real health...
Just checking in – Have you had a chance to book your ELI App feedback session?🧡 Hello Reader, I hope you’re doing well! Just a quick note to say — we haven’t seen your session come through yet for the ELI App feedback testing, and we’d really love to hear your thoughts. Whether you're a parent or caregiver navigating life with sickle cell, your insight can truly shape how this app supports families like yours. It'd be really helpful if you could share with others as well. 👂🏽 It’s a simple...